



Pilomatrixoma.... That is a condition that Lillian suffers. It is defined as (per eMedicine) "...a benign appendageal tumor with differentiation toward hair cells. It usually manifests as a solid asymptomatic, firm nodule." In other words, Lillian gets harmless bumps under her skin that have the potential to grow quite large. She has already has one removed and it left a huge nasty scar on her arm (which I was not expecting.. they had informed me maybe a half inch..). Since that surgery she has recently developed two more bumps, one next to the scar and another on the back of her upper arm. I took her into the pediatric dermotologist today and they recommended removing them now before they get any larger.. the one on the back of her arm has grown quite a bit in a very short amount of time. I, of course, am torn. Last time she had one removed, it was very traumatic. It was about a year and a half ago and we had to go to the hospital and she was put under anesthesia, which, if any of you had kids go through that, is very traumatic when they come out of it. That and the fact that we were not allowed with her during the surgery and also that it left such a huge scar has me skittish. Do I really want to keep cutting her open everytime she gets these? But then again, do I want to chance the possibility that they get so big that they need to be removed anyway and leave an even bigger scar.
Now the part that really bugs me. The dermotologist I saw today wants to do it "in house" (or in the office) with just numbing meds. He said they can do it where it will leave only a little scar, very non-invasive while she lays there and watches a movie with me. I informed him that even if she can't feel it, once she realizes they are cutting her skin she will flip out. He then informed me that they can also do something called conscious sedation, where she is not put totally under, a lot less traumatic. This to me sounds like the best option. He is going to confer with some of the other doctors and get the best course of action and let me know what he wants to try first. They are leaning towards no anesthesia, I am leaning towards making her a little loopy. Anyway, I have an appointment for Sept 30th to get these removed, one way or another. Now my question. If they can take these things out this easily and non-invasive now, why couldn't they a year and a half ago!!!!!! I am kinda pissed, strike that, I'm a lot pissed that she had to go through all that then and has scars as a reminder, and oh yes, even though she was little, she stills remembers. Perhaps because she was so little they wanted a pediatric doctor to do it? Nonsense. The medical system can make me so mad sometimes. One doctor will say one thing and another something else. You think you have to trust your docs because they know best, right? Anyway, this new option sounds a lot better and we are going for it. I just hope she doesn't get many more of these, poor girl.